Today Elli was working on some little crafts of her own imagination. I had to say, “Tomatoes are not craft supplies!” 🤷♀️
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Yesterday after Ki’s bath he was so relaxed that his oxygen saturations were 99-100%. He had been on 0.5L of oxygen for several days but we felt we could try dropping back to 0.25L. He continued to keep his sats up so I suggested a trial run off oxygen. He rocked it... Three.Full.Hours!
This afternoon his nurse felt he was ready for a second trial. She turned off the concentrator at about 2:45pm... it is currently 10:10pm and he is still off oxygen!!! Needless to say, this is a very exciting development. 😊 We were able to get a new bath chair for Ki through his teacher at the school district. We tried it out in the living room first. He seemed to be a fan. 😉 Since I had already planned to give him a bath today we decided to try it out. Until now we have been using an infant tub set on the counter in his room. It worked okay, but it was difficult to keep him in the correct position because he lacks trunk strength. This new chair allows us to strap him in and keep him secure. It went better than any bath we’ve given him to date! 💕
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AuthorHi. My name is Kristin. I am wife, mom, friend, Christ-lover. Thanks for stopping by and sharing in our story! ArchivesCategories
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