We’ve had two appointments added to our schedule for this week... both semi-unexpectedly. The second appointment we added was for his hearing aid and will occur on Wednesday. When I met with the audiologist last month to pick out the hearing aid she couldn’t give me any kind of timeline regarding when we might get the aid ordered. I was told it could be a few weeks, or it could be several months. Everything was dependent on insurance. So, we were in standby mode. Late last week I got the call that his aid was in and ready for fitting! I tried to get that appointment for Thursday, as that’s when his other appointment was already scheduled, but the audiologist is in surgeries on Thursdays and unable to meet with us then. It will be interesting to see if/how his vocalizing changes when he can hear more clearly. It will also be interesting to see how overwhelming his sibling noise will be once he can hear their true volume. ;) Our Thursday appointment is for a quick brain MRI to check his ventricles, followed by a meeting with the neurosurgery team to go over results. During his last visit with the neurosurgeon it was mentioned how nice it is that his fontanel is still open as it gives us kind of an indicator to monitor inter-cranial fluid pressure. Well, in recent weeks the fluid there has not been fluctuating as much as normal, and it’s begun bulging more. There have been other minor “symptoms” that tell us it’s time to get things checked out. While I’ve been praying against it, I have a sense that this is an indication another revision is needed. Of course that will entail a hospital stay. *sigh* So, on Thursday I will pack a bag and hope not to need it!
Pray for Ki, boldly asking God to fix the issue with the shunt so we don’t need another surgery. Pray for our travel in the morning both Wednesday and Thursday; clear roads, little traffic, and no complications from the littlest passenger (he likes to delay our departures and keep trips “interesting”)! While you’re praying, please include our friend Esther. She is a precious one month old with TD and could really use some miracles. Her story is found on Facebook here: https://www.facebook.com/estherroselea/. I had the privilege of meeting Esther’s mom In person when I went (alone) to the hearing aid appointment last month. You can find pictures of that meeting on Esther’s page. :)
6 Comments
Nicole
2/17/2023 06:00:21 pm
I took care of Hezekiah in the NICU and occasionally think about him. Just wanted to stop by and say hi to him and his fam. ❤️
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Loucks’ Life
2/17/2023 09:33:51 pm
Thanks for stopping by the blog! Seeing your comment makes me think I should post some updates. ;)
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6/28/2023 06:21:22 pm
En iyi adıyaman ilan sitesi burada. https://adiyaman.escorthun.com/
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AuthorHi. My name is Kristin. I am wife, mom, friend, Christ-lover. Thanks for stopping by and sharing in our story! ArchivesCategories
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